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The MRI results will be important!

Article posted on Tuesday, September, 18th, 2012 at 8:31 am

Checking out her favorite fish at GHS Children's before her MRI

“The MRI results will be important.” That is what continues to be reinforced to us by all of Neely’s medical team.  This test will help us to determine if there is any recurrence of ADEM or anything else that could be contributing to the mis-fires that we see in Neely’s EEG.  Neely’s MRI yesterday went just as planned.  She knows the drill pretty well at this stage of the game, but we still walked through the procedure with her ahead of time to make sure she knew exactly what to expect.  She was nervous about the IV, but knew that everything would be easy once we finished that part.

The nurses at Greenville Children’s Hospital are wonderful! (I really just can’t say enough good things about them.) Neely wore a light blue hospital gown that was so long it flowed behind her on the floor.  The nurses just gushed over Neely’s long blonde hair and ‘blue gown.’ Their sweet words of encouragement and Neely’s imagination immediately transformed her into Cinderella. She strolled around in the waiting area as if she were walking through her own private castle. I wish I could have taken a picture, but there are no electronics allowed in that part of the testing.

The child life specialist joined us just before the procedure to make sure Neely had everything she needed.  There was an miniature MRI machine set up with a monitor where Neely could help various toy animals get their MRI test.  We scanned an alligator,an elephant, and even a chicken.  It was a great opportunity for Neely to make sure she understood exactly what was happening.

For Neely, coping means understanding what is happening and what to expect.  I think that by participating in the procedure, she feels like she has some control over the situation. Neely helped the nurses clean and sanitize all the little parts and pieces. She even helped the nurse and doctor to push the medicine into her own IV.  I’m sure I’ve said this a hundred times, but I wish I had only an once of the courage that Neely does. She is one brave little girl! She never shed a single tear and even told the nurses “Thank You” when they were finished.

With the test behind us, the only thing left to do is wait for results and pray for the best.  This is the part that I like least. It is comforting to have a plan and to begin working toward a goal.  We’ve had all the necessary conversations with our trusted medical advisors, we’ve adjusted Neely’s medication, and the information we need to determine next steps is on the way.  We’ll keep you posted when we know more.  Thank you all for your continued support.

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