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EEG Results are Here

Article posted on Sunday, August, 21st, 2011 at 6:23 am

Waiting for test results can be so hard!

And while we didn’t get the news that we hoping for, we are so grateful that Neely is doing well. She did a great job during her EEG. She did everything the technician asked and didn’t complain at all.  Only once while she was trying to go to sleep (during the sleep portion of the test) did she whisper to Jamie and I and say, “I don’t like this, Mom.”  Her courage and positivity in the face of everything she has been through literally makes my heart crumble to a million pieces.

At one point Neely said, “Mom, when I grow up, I’m going to sign-up here and be just like Dr. Morales.” Wouldn’t it be great if we could all just “sign-up here.”  A child’s perspective is the most amazing gift and I wish that as adults we could still see the world through child-eyes.

Anyway, Neely did such a great job that we were able to breeze through all the parts of the EEG. Unfortunately, her test still showed the potential for seizures.  The good news is that she even though there is potential for seizure, there was an  improvement over the last EEG so we are hopeful that this news is just one more hurdle to cross and not something that she will live with permanently.

So what does that mean? It just means that we keep doing the same things we have been. We stay on the anti-seizure medicine, which is working well to control seizures for Neely, and we keep praying for better results next time.

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