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Neelys Miracle helped Another Family

Article posted on Wednesday, September, 15th, 2010 at 8:18 am

This is how it happens.

I check my email ~ sorting through the barrage of school announcements, Lillian Vernon sales, and Mom e-newsletters, until I come to a subject line that reads, “Contact through Neely’s Miracle from <name>.”   At that moment my heart starts to race and my fingers anxiously dial or email whatever contact info has been left by a visitor to Neely’s site.

It’s hard to explain the feelings that I have in those moments.

  • Sorrow that there is a family in the midst of a tragedy.
  • Fear that I will not be able to help them find what they need.
  • Excitement that the website is doing what we intended it to do.
  • Anxiousness about meeting the person on the other side of that contact form.
  • Relief at the prospect of being able to help someone.

It’s enough to either make you want to check your email every 5 minutes or not at all….I usually check 3 or 4 times each day.  Is it odd that after so many of those emails, I still feel the same way I did when I opened the first one.  And yesterday was no exception.

This time it was someone in Kentucky who was searching for help.  Help in the form of education, resources that they could turn to for information on an neuroimmunologic disease diagnosis that was just received, and hope.  So that is exactly what I tried to give them.  Those phone calls don’t get any easier ~ I guess it was a mistake for me to think they would.  But the number of resources and contact information continues to grow, as every phone call teaches me something that I might be able to use to help empower the next family.

I am a planner.  And Neely’ has taken us down a path that I could not have imagined or planned.  So this planner is having to learn to take it day by day, and thoughtfully decide our next steps based on whatever the day brings.  That is a difficult thing to do, but we’re getting better.

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