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It's all about the connections

Article posted on Thursday, July, 29th, 2010 at 8:00 am

Shortly after lunch I received an email from a Mom who had gone to Neely’s Miracle looking for help and contacted me.  A friend of a friend of a friend (that’s exactly how it should work) had told her about and encouraged her to check it out.  This Mom had just learned that her 2 year old little girl has ADEM (Acute Disseminating Encephalomyelitis)

Less than 24 hours passed before she learned about the website.  As it turns out,  they are being treated at Greenville Children’s Hospital and I was able to go and visit in person yesterday afternoon.  While I am dreadfully sorry that her sweet little girl has ADEM – I am relieved that we were able to connect and hope that I can be a source of support for her. (I haven’t yet asked her Mom if it is ok to tell her story – so I can’t give you to many details. ) When I was in her shoes, I would have loved to have another mom to talk to.

Because I don’t want you to worry (and I know you will), I’ll tell you that the little girl is doing very well.  While I was visiting she was playing and talking – She really looked great.  Her Mom and Dad have lots of hope and a great support system.  I was so happy to see that they were doing so well.

Just like us, getting to the prognosis was difficult.  There were told many times that “it was just a virus” and were sent back home to wait it out.  Thank goodness this family didn’t accept that answer.

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