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Another Parent like meArticle posted on Wednesday, July, 14th, 2010 at 8:00 am
Thanks to The Transverse Myelitis Association, I was given the opportunity to reach out to a family that is recovering from ADEM. (I haven’t yet asked her parents permission to share her story – so I won’t share any personal details here until I do.)
Suffice it to say that she is a 3 year old little girl (with features that are strikingly familiar to Neely – that was a shock.) She developed ADEM in May this year (Neely’s ADEM came May last year) and is doing really well in her recovery.
Naturally, there are a lot of similarities in our families experiences and it felt really good to make that connection. When we were in the hospital last year, I could have really used a phone call from a parent who had gone through what we were experiencing. Assuming other parents also feel that – I am looking forward to the opportunity to reach out to those families and offer them support and encouragement.